I am grateful that I work and learn on the ancestral and unceded lands of the hən̓q̓əmin̓əm̓ and Sḵwx̱wú7mesh Nations in Burnaby and on the ancestral and unceded lands of the xʷməθkwəy̓əm (Musqueam), Skwxwú7mesh (Squamish), Stó:lō and Səl̓ílwətaʔ/Selilwitulh (Tsleil-Waututh) Nations in Port Moody
Jason Chan, a retired counsellor, an ordinary human being, decided to share his extraordinary life experience. He is one of my dearest friends, whom I have known for decades, and is a person that I admire.
COPYRIGHT: All written content is copyright © 2024 of Jason Chan. You may not otherwise copy or transmit the content either electronically or in hard copies. You may not alter the content in any manner.
The publish of this article has received the permission and consent from Jason Chan
The World of Lun
CHAPTER 1 - A Different World
November 24, 2002
This is a different world. Finally I decided to introduce it to you all.
Lun, aged 16 this year (i.e., November 2002 this article was written) my eldest son, was diagnosed to suffer from Childhood Autism at age four. Autistic children are born with a profound disability. They cannot communicate normally with the world, and shut themselves inside their own world.
Outsiders cannot understand their world. Even I, his dad, am not sure what is in his mind even though we have been together for sixteen years. He laughs sometimes, and other times he is sad.
His coming has changed our lives.
After confirmation of his Autism, we knew that our living had to be adjusted accordingly. Since then we have stepped into a different world. This world tastes differently. Outsiders are hard to feel and know what it is about just by words or imagination.
Simply put, he becomes the centre of living with every program and schedule arranged around him, everyday for sixteen years.
As everyone else, our lives are filled with joys and sorrows. It is very stressful yet fun. Physical and mental hardship were plentiful for sure. What makes the difference is the acceptance of the reality, open mindness and support from families, friends and community.
An idea surfaced in my mind a few years ago. I want to introduce the lives of special needs people and their families to the community
Most special needs children cannot express themselves clearly. Their parents are always labored with chores, routines, and caretaking, spare no time sharing their stories. As a result, this community lives silently in the unnoticed corner of society.
Indeed this community has many unique sharing on living, love, and lives from their unusual life journey.
I am as busy as everyone. Caring for Lun has consumed much of my energy. Even so, I always pledge to tell the community whenever a new challenge from Lun happens. Once he calms down, like a losing air balloon I have no energy and will to write.
My memory will fade with Lun’s growth to adulthood. Procrastination will finally empty my record of struggle. It is not worthy.
This column is not for Lun because he cannot read. It is about Lun, but not exclusively, only because I know him best.
I may not be able to take it if Lun can read and write one day.
DISCLAIMER: The views and opinions expressed in this article are solely of the author and do not necessarily represent views, thoughts and opinion of the website host. This website assumes no responsibility or liability for any errors or omissions in the content of this site. The information contained in this site is provided on an "as is" from the author, basis with no guarantees of completeness, accuracy, usefulness or timeliness..."